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Monday, February 28, 2011

Mornings Can Be a Little Hairy Around Here

Oh Gracie!  Your poor husband to be!  This is how you wake up in the mornings.


                                                                 At least you're happy!


                                                              Does my hair look okay?


                                           Yes, I will show every future boyfriend this picture!


                               You seem to be thinking, "I wish my mom would brush my hair already!"


                                                 It doesn't look too bad from this angle!


                                     Oh dear, this angle tells it all.  I love you Grace--and your bed head!

Sunday, February 27, 2011

We're All Learning Here

Grace,

This weekend we hit the ground running with our language boot camp of sorts.  We try & seize every teachable moment to work on language.  That meant practicing the words hands & water while you took a bath, practicing naming body parts while we tickle you ("I'm going to tickle your....leg!  arm!," etc.), later using a sticker ("I'm going to put this sticker on your belly!  hand!  nose!"), etc.

When we went to the Children's Museum on Saturday we'd normally let you play however you wanted.  This time, we were right there beside you, holding toys next to our mouths as we said them so you would look at how we said words.  We used sign language liberally, even though I think your daddy might have been a little comfortable in public at first.  You explored the new areas they recently changed but when you found the train set, you had to play with it before we left.

All morning, all day we worked on language.  You didn't say any actual words, just babbled and we felt discouraged.....until about 4:00.  You pointed and said "belly" the best you could.  You named a body part other than eye or nose!  Victory is ours!

Last night, you grabbed your snowsuit out of the closet at 8:45 p.m. and said, "Side?  Side" for outside.  Now, do you think your daddy could tell you no for even one moment?  Nope. He bundled you up and out you two went. This morning first thing, you got that snowsuit back out of the closet & brought it to him.  We made you eat breakfast first, but then you two were out there.  Here's the hard part about you not talking and being so tough.  When you came back in I got you ready to take your bath & saw it.  Your one boot is too tight & cut off your circulation on your leg so badly there was a circular bruise 2/3 around it and it was swollen.  Your daddy felt so bad!  He said you'd limped for a minute or two but he'd asked if you were okay & you acted fine after that.  Don't worry baby, we won't put you in them again!

Today you've been busy talking.  We went out to lunch at this great pub downtown.  The name Karma should have warned us that trouble may be afoot but we like to try new foods.  As soon as we sat down, you got out of the booth & grabbed my hand.  We knew from experience that this was your way of telling us it was potty time.  Then you were amazing--you said "Go!"  We hugged you with joy at this new word & the fact that you were actually signaling us in a verbal way for something.  You said "Go! Go!" again only more urgently and we were like "oh yeah!" and I rushed you down the stairs to the restroom.  You went and then we did your favorite activity--washing your hands.  Going back up the stairs to the main restaurant I could tell you thought you were such a big girl, you laughed with each climb of their really big steps.
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When we sat back down to order you looked at me and said "Go!" again.  We praised you for speaking but ignored your request.  Honestly, I just thought you wanted to go play in the water.  We ordered our burgers & when they came we thought they were the best burgers ever. Meanwhile, you didn't eat but played under our table instead.  As we paid the check, you finally came out from under the table and then we smelled you.  You weren't that close but we knew there was trouble.  I ran you down to the bathroom and when we were close you did this waddle that looked like you just spent 9 days riding a horse.  It was the "get this sticky poo off me" shuffle.  You're potty trained so you had panties on and we didn't bring spare anything.  After 20 min of getting tar like poo off your rear & legs, we finally started climbing the steps back upstairs.  You were feeling much better evidently, in great spirits & shrieking with joy as you jumped up on each step.  When we were close enough, I ran ahead to our booth, grabbed your daddy's coat & wrapped you in it to hide the fact that you were now pants-less.  Your pants were in my hand but I don't think those panties could be saved--we left them in the trash there so now I'm not sure if we can ever go back.  We've learned though.  When Grace talks, we need to listen!

At the grocery store tonight, you were a total rock star!  You saw popcorn in a bag, pointed and said "popcorn", corn in the freezer & said "corn," & saw pizza and said "za!".  Cutest of all, you sat nicely in the cart & as I handed things to you, you tossed them behind you into the basket section of the cart, then we'd high five.  Gosh, I love you so much.  You're just too cute.  So cute I had to buy these Oreo cookies to share with you.  During pregnancy I ate so much of only two foods that we know you're half Oreo cookie & half KFC.  Sorry for the poor nutrition baby, but mommy was really sick for the first 7 months so she ate what stayed down.

Want to know the best best best thing you did today????  In the car on the way to the grocery, you focused so hard and said "mmmmmmommma"  "mommmmmmma" "moooooommmmma."  You didn't mean it yet but you were practicing & when I praised you and said "That's it baby!  That's my name!  I'm momma!"  You smiled at me with this huge grin that clearly said "Don't you worry momma....I'm gonna get this."

Friday, February 25, 2011

First You Cry

Grace,

You are a beautiful little girl.  Your strawberry blonde hair has these adorable ringlets of curls that warm my heart every time they bounce.  You are smart, problem solving all the time & getting yourself in trouble for doing it, too.  Not too much trouble though--you're too cute to actually get in real trouble.

You sat up at 5 months.  You crawled at six months.  You walked at 7 1/2 months.  Your first word, Mom (thank you for that one!), was at 9 months.  Then you stopped.  Well, it wasn't that you stopped, more like slowed to a verbal crawl.


Your momma is a school psychologist & she knows child development.  She knew an explosion of language development was just around the corner.  And then there was another word here, another word there.  Months went by and you didn't say mom again.  You didn't say the other words again either.  I worried.

At 18 months we were playing at the park and another girl a little younger than you was talking like crazy.  You only said 3 words regularly.  She was scared to go down the slide though.  I beamed with pride at you going down the slide screaming whee! as you went.  Inside, I worried.


Friends and family began commenting "She'd talk if you made her talk."  "She doesn't talk because she doesn't have to."  They gave examples of how other children your age were given time outs for a certain type of behavior or for not listening.  We grimaced & defended you.  "She doesn't understand." I'd say.  Most just looked at us like we were too "soft," not realizing that judging our parenting skills wasn't helping.

Your second birthday marked the end of a very long year-long wait for me.  That's a very long time for a mother to worry!  At your two year check up, I began to cry as I tried to outline my concerns.  Your vocabulary was 15 words.  You have said many words but we don't hear them again.  It's like your language disappears.  They handed me a referral slip with a number to call.

Your first speech evaluation was in January and it was hard for me.  As I answered questions, I worried:  No you didn't call for me, no you didn't show an interest in language, no you didn't like reading books with us but yes we tried every day, no you didn't use action words.  Your vocabulary was 18-25 words.  You scored so low on the test that it couldn't be scored.  I cried as we talked about speech therapy options.

Today was your final speech evaluation & you will start speech therapy soon.  I think today was the hardest day because today we found out exactly where things stand.  You understand speech at an 11 month level.  You speak at a 12 month level.  What's "really alarming" to the speech therapist is that your understanding of language is lower than your speaking skills, which is very rare.  The more we talked I realized--you didn't come for a bath because you didn't know what we were saying.  You get upset when we leave somewhere or stop an activity because you don't understand phrases like "almost done" or "one more minute."  You cry because to you it's all very sudden, without warning.  You didn't come to eat until we put your plate on the table because you don't know what "it's time to eat" means.  That one hit me the hardest.  I tell you it's time to eat three times a day but you don't know what I'm saying.

You are a visual & hands on learner.  You are incredibly independent.  If you want a fork instead of a spoon to eat with you just go get it.  When you have to go to the bathroom, you just go on your own.  You practically potty trained yourself.  You are a visual & hands on learner not to the detriment but to the exclusion of auditory learning.  Your very strengths keep you from learning language.

As soon as the evaluators left today, I burst into tears.  Sometimes that's how it is Grace, first you cry.  I cried because we've already worked so hard every day to try and build your skills.  I cried because you're as tall as a three year old but have the language skills of a one year old.  Wherever we go, even some family members judge you already.  They expect you to behave like your height.  People can think we're bad parents Grace & that's why you can't talk or why you don't follow directions, that's not the part that scares me.  I don't want people to think that you are stupid.  That is my heart's biggest fear for you because yes, people judge two year olds sometimes harsher than they judge adults.  You are so smart it scares us at times when you demonstrate your crazy problem solving skills but you don't speak the language so it can be hard for people to see.  Your level of independence alone tells us you were made for great things.

Some people (not professionals) have suggested you need more time with kids your age.  What they don't know is kids your age don't want to play with you because you can't talk.  They don't know how to respond to your jargon/babble and they walk away.  My heart breaks when this happens to you because you don't understand.

Some day you will be able to say Mom again.  Some day you will be able to tell me you love me, hate me, wish I was a better mother--these days I'd take anything.  lol  Some day when we go to the doctor you can tell her what is wrong--if your throat hurts or tummy hurts--but for now we'll do our best to interpret your tears.  Some day we will do a ton of crafts because you'll understand what we're making and the directions I'm giving you.  For now, cooking is your passion & you help us every night.  As long as you have visual cues, you're awesome.  I don't know a lot of other kids that can cut vegetables at this age (you were 18 mo old in this picture). :)

Today is the day I really let myself cry.  Tomorrow your daddy & I will start taking pictures and using them to make visual schedules and prompts for you for everything.  There is no doubt in anyone's mind that you will learn to talk.  We'll get there but it will possibly take a few years.  God gave you this school psychologist mommy because she knows all about disabilities, all about intervention, and all about how to love with a loyalty so fierce she'll take on anyone who dares to question your intelligence.  God gave you to your daddy because he has the patience of Job, the stubbornness to see any challenge through, and the ability to get us all laughing like no one else.  God gave you to us because He wanted to bless us in the best way imaginable.  It is truly by God's grace that you were given to us and that is why we could think of no better name for you.

I can only imagine the lessons this will teach us but for now, one step at a time.  First I'll have a good cry but tomorrow, we have work to do!